Friends and Families Muscular
Disorders Foundation

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Friends and Families Muscular Disorders is a 501(c)3 not-for-profit organization dedicated to increases the quality of life and independence of children and adults with any type of neuromuscular disorders, MD, CP, Lupus, MS, ALS,Parkinson plus over 100 other disorders/diseases well as empowers their families, through advocacy, education, and medical financial assistance through out New York State.

 
 
 

Our Mission

Friends and Families Muscular Disorders Foundation (FFMDF) 501(c)3 increases the quality of life and independence of children and adults with any type of neuromuscular disorders, MD, CP, Lupus, MS, ALS, Parkinson plus over 100 other disorders/diseases well as empowers their families, through advocacy, education, and medical financial assistance throughout New York State.

 

 

We do not receive any funding from the government or funding from United Way. We do not receive payment for running FFMDF. We do not give grants for research.

 

 

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We are very excited to announce our 2020 Ambassador.

Her name is Carly Waddington from North Syracuse she's 6years old . The daughter of Mark and Kim Waddington.

After birth, Carly was diagnosed with Down Syndrome, which is accompanied by low muscle tone.  Carly had received physical therapy along with occupational therapy, speech therapy, and a special education teacher through early intervention from 6 weeks old until 3 years old. 

Once Carly was in preschool, the North Syracuse Central School District continued her therapies for another 2 years. Carly was then enrolled in kindergarten, where she was in a full inclusion classroom. 

 

Carly has flourished striving to keep up with her peers, and is loved by every person that she interacts with everyday.  At 5, Carly began therapeutic horseback riding through ARISE.  She will ride in different positions, making different movements or doing activities (all guided) which are all directed at increasing core muscle strength.  She absolutely loves riding. Her family could not be any happier with the progress that Carly has achieved over the past 6 years, and she continues to amaze us all!

Photo by Blessed Reflections Photography, LLC

 

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Friends and Families Muscular Disorders is a 501(c)3 not-for-profit organization dedicated to increases the quality of life and independence of children and adults with any type of neuromuscular disorders, MD, CP, Lupus, MS, ALS, Parkinson plus over 100 other disorders/diseases well as empowers their families, through advocacy, education, and medical financial assistance throughout New York State.

CONTACT US

Friends and Families Muscular Disorders Foundation 

PO Box 45 Clifton Park New York 12065

EIN. # 11-3849593

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