This testing would eventually determine that their young sons’ seizures were a result of the pathogenic gene variant SCN1A, and Lennox was diagnosed with Dravet Syndrome at 1 year of age.
Dravet syndrome is a rare, drug-resistant epilepsy that begins in the first year of life in an otherwise healthy infant. It is lifelong. Symptoms may include Frequent, prolonged seizures, Behavioral and developmental delays, Movement and balance issues, Orthopedic conditions, Delayed language and speech issues, Growth, and nutrition issues, Sleeping difficulties, Chronic infections, sensory integration disorders, and autonomic nervous system problems.
Despite his difficulties, Lennox is a joyful, beautiful little boy who loves to play with his siblings, blocks, balls, trucks, and cars. He is currently enrolled in speech, play and physical therapies.
FFMDF’s goal is to assist Lennox and his family in the acquisition of a Service dog. Service dogs have proven to be an invaluable, life-saving asset to those with physical and developmental difficulties. Along with the ability to alert the family when Lennox is having a seizure, a service dog would also provide companionship and support developmentally and emotionally. So, please join us in welcoming our newest ambassador Lennox, and if you can, give a little, help a lot